Sorry, I've been busy the last few days so haven't had the opportunity to come back to this till now.
I quoted The Independent as I didn't want to use the Daily Mail
article or the Fox News ones I found on the issue.
I've read a few news articles about this story and it seems the parent is partially at fault. But nevertheless I think the Pilot seriously overreacted in this case. Whether this was miscommunication or just an "Oh great I have a kid on my plane making threats I'm not in the mood for this..." probably influenced the flight crews decision.
When quoting the article I tried to be impartial and made clear that I was basing my original comments on face value of the information available at the time. Of course me having ASD would lead to me reading the article in poor taste...
Dr Beegle is quoted in some articles as saying that she had taken snacks / food with her for her daughter but these were refused. This leads me to
speculate that her Daughter was severely distorted from her usual routine of a hot meal at a certain time. This could cause any person with ASD some serious anxiety and "freakout" issues. ASD sufferers
DO NOT handle change in routine at all well.
Whether this was an oversight by the parent, or they were at the airport and the cafes/restaurants weren't serving hot food etc we don't know. The Hot Meal was offered to be paid for and I think had the airline staff have accepted that and been provided the meal then none of this would have happened.
From other articles it's suggested they've flown before and not had problems. So I think this is just one of those moments of when all involved got it seriously wrong. So I think a certain element of blame lies with all involved.
What I do know is that Special Assistance is provided at Airports and through my own experience it's either very good or atrocious... Cannot fault Ryanair when I've booked it with them, I've always received the special assistance. So I am also left wondering that maybe arrangements were made which failed to get to the right people.
Now for my personal belief. I think the parent is right to highlight the issues of ignorance to Autism. I have ASD and Schizophrenia, IBD and Continence issues... Now I have never declared Schizophrenia to airline staff because I know for absolute fact that it would raise concerns the moment I got near the aircraft. Some airlines actually require safety to fly for certain mental health conditions. So I adopt the don't ask, don't tell policy.
With this in mind if I received poor treatment from Airline Staff because I had an episode and hadn't disclosed the correct information beforehand, I wouldn't exactly go running to the press about it. That being said, I would absolutely do so if the correct declarations were made, I was deemed fit to fly by my GP and had made notice to the airline of my requirements.
This leads me back to an EasyJet experience where I had given EasyJet 2 weeks notice that I required an Aisle seat so I could gain quick and easy access to the toilet. This was to be at the front or the back of the plane. This was accepted, confirmed possible and that they would "look forward to seeing me"
Arrive at the airport and made myself aware to the Special Assistance team who indeed already had the paperwork from my phonecall with EasyJet. When we actually came to get on the plane (I hate flying remember) I started to get a bit agitated as I would do. The Pilot decided that I must sit in the Window seat. The Special Assistance team and myself protested that I had been told I could have an Aisle seat. The Pilot to cut a long argument short basically said "My Aircraft, My Rules, don't like it, don't fly on it or suck it up and deal with it"
Needless to say this seriously got my back up so I said that I had given reasonable notice to my requirements as of 2 weeks prior and told it would be fine so why was it now a problem. Playing Devils advocate I think he wanted me in the Window Seat so that if there was an emergency I wasn't going to be getting in others' way... Very distasteful... But probably bang on with the truth
This then caused the Senior Cabin Stewardess to intervene, Pilot has spoken so please take your seat. This was a rough version of the conversation:
Me: "No, Aisle seat or I don't fly, those are the choices"
Pilot: "You'll delay the flight even more sir, so please take a seat" - He then goes into the Cockpit
Me: "Then I'll be getting off, I am NOT sitting in that Window Seat"
Stewardess: "So you're really going to delay more than 100 people whilst we offload your bags etc"
Me: "Yes, absolutely. I made more than reasonable notification which you are now refusing to honor, so their delay is not my problem. Like your pilot said, suck it up </smug tone>"
Exactly this same incident happened a year later on a Ryanair Flight... However the Pilot said I could have the Aisle Seat provided that noone was sat next to me. This caused upset with fellow passengers who wanted to sit together. But as reasonable notice was given he upheld my request, The Crew were in a rather difficult position as the Pilot wanted me to be able to fly in as less an anxious state as possible. But it was all sorted and everyone was happy and the flight went without incident.
Having digressed slightly there. I am trying to explain (badly) that I think United Airlines overreacted to the whole incident. That is opinion that may change if it becomes clear at a later date that there was indeed much more to the story than there is now.
Everyone saying "Parent is at fault yada yada yada" doesn't really solve anything. Whilst I don't want to start a serious flame war. I often find these comments come from those who have little to no knowledge of care for someone with a Disability or blind ignorance to that disability. This is not always the case. But from my experience that is mostly true.
Much like has been said here regarding persons' with disabilities. I would like to lead as reasonable and normal a life as I possibly can and integrate with society / he community. However I am aware of the significant disadvantages I have and I know what / where my limits are. People get irate with me for going to the toilet often. On a good day the number is higher than average, but tolerable. But do people honestly belief I want to be visiting toilets upwards of 20 - 30 times a day? Of course I don't! But sometimes I really don't have a choice. So comments like "You should have gone before we left" I find depressing. So I tend to respond "Well I did, that was 20 minutes ago, this is now" - some people really can't take the hint can they...?
I have every sympathy for the teenager in this story. I recall my upbringing as a teenager and if any of that is a close resemblance to her, then I really do feel for her and hope she doesn't get tormented for this. I cannot condemn someone who reacted to a situation in a way they couldn't control... Throw me in a small room with many people and watch what happens!
Sadly, most with ASD are some of the nicest and most intelligent people out there. But often very misunderstood and dismissed as awkward/rude/annoying.